tag:blogger.com,1999:blog-25073771.post7960719340842183196..comments2023-11-05T04:05:03.588-08:00Comments on A Chronic Dose | A blog about chronic illness, healthcare, and writing.: In Preparation: Rare Disease DayLauriehttp://www.blogger.com/profile/10392908564921877962noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-25073771.post-8902705147078986422009-03-04T09:05:00.000-08:002009-03-04T09:05:00.000-08:00Laurie, thanks again for reminding everyone that w...Laurie, thanks again for reminding everyone that we have more in common that what we don't regardless of our illness(es). Though it must be frustrating to have a rare disease, when it comes to "rare" when it's us diagnosed with it, it feels "rare." It's easy to get caught up in the "grass is green" syndrome, thinking those with rare diseases have it better (or worse) than those of us with "popular" illnesses. Regardless of our illness, we are all on the same side. If we continue to bond together and combine our efforts we can make much more of a difference than if we all only participate in groups of people who have the same illness as us.<BR/>Blessings,<BR/>LisaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-25073771.post-62921813100519029292009-02-24T22:01:00.000-08:002009-02-24T22:01:00.000-08:00Rare disease mention.....the internet is almost us...Rare disease mention.....the internet is almost useless when having a rare disease and so is a book....and even doctors. Even my rare arthritis is rarely (no pun intended, haha) found on arthritis resources!<BR/><BR/>I feel like I could go on for days...brittahttps://www.blogger.com/profile/17364260264700856613noreply@blogger.com