As so many of you know, fundraising, awareness, and research are critical for improving patient outcomes and quality of life. For rare diseases that don't get the face time and air time more common disease receive, this is especially true, and disease organizations are often our lifeline. So, I was pleased to get an e-mail last night informing me that GoodSearch named the PCD Foundation the "Charity of the Day" for today, Wednesday, June 25, 2008. Rather than forward the e-mail, I've included text from the PCDF press release below:
"GoodSearch.com and GoodShop.com are convenient ways for the PCD community to participate in fundraising for the foundation with no direct out-of-pocket expense. Goodsearch.com is a search engine (powered by Yahoo.com) that pays a penny per click to the designated charity. Goodshop.com is an online shopping service that can be accessed on the GoodSearch.com homepage that allows buyers to purchase from a wide selection of popular vendors with a portion of the sale going to the PCDF. The buyer does not pay any more than if they were to shop directly from the merchant.* Together, GoodSearch.com and GoodShop.com are powerful and convenient revenue-generating options for non-profits of all size. For small non-profits, like the PCDF, they are an essential part of our revenue stream...
*You can shop at hundreds of great stores. Amazon, Best Buy, Macys and many others have teamed up with GoodShop and every time you place an order, you'll be supporting the PCDF!"
Here's an idea--if you're heading to Amazon to buy Life Disrupted, do it today through GoodSearch.com and help a wonderful cause. As a PCD patient myself, I can't say enough how important the community-building, education, and research efforts the PCDF spearheads are.
(And no, I didn't plan that shameless plug. The timing was just that good!)
PS--Tonight at 8:30 pm EST I'll be a guest on syndicated health columnist Judy Foreman's Health Now, an Internet radio show on HealthTalk . If you're free, tune in and listen, and click on the link to register and ask a question.